A professional organization for scientists and researchers studying oncology, but also includes information and materials specifically for patients. Features links to cancer support groups and informative websites. AACR’s Scientist-Survivor program connects two key cancer communities: researchers and patients.
A comprehensive informational Website replete with resources. ACS support efforts include clinical trial matching and an online community. Visitors seeking direct aid are encouraged to call the helpline or contact their local ACS branch.
Works to help cancer patients find appropriate clinical trials or gain access to an experimental medication. Describes various treatment options, the drug development process, and how clinical trials work.
CC’s financial assistance grants appropriate funds toward copays, medication, transportation, childcare, and homecare. Free one-on-one counseling from professional oncology social workers is also available, as are telephone and online support groups and workshops. The site contains myriad downloadable publications searchable by topic and cancer type.
This site is a searchable database of more than 82,000 federally and privately funded clinical trials in the US and throughout the world. You can search by condition, medication, sponsor, location, and other criteria. Each trial listing includes the treatment protocol, eligibility criteria, and contact information. The site includes a glossary and general information on clinical trials.
Mesothelioma is a type of cancer that affects the protective linings (mesothelium) that cover different organs. It is becoming a well-known health crisis due to its association with asbestos exposure. By nature, mesothelioma takes 20-50 years to produce symptoms after the initial asbestos exposure, making a diagnosis shocking and devastating to patients and their families.
Besides raising money for all types of cancer research, the LAF offers several programs for patients and caregivers. LAF provides one-on-one support through the LIVESTRONG SurvivorCare program. The Website has a blog, clinical trial matching service, survivor stories, tools to assist with treatment decisions, videos and Podcasts, downloadable brochures, and more.
NCI offers an exhaustive informational site addressing every type of cancer. The database is updated regularly to include information on the newest treatments and breakthroughs. NCI provides a helpline and live online chat assistance for patients and caregivers. The site also includes a link to the NCI clinical trials database, with more than 8,000 trials currently enrolling patients.
Excellent site recommended by Dr. Masoud Khorsand, Kymera’s President. This site is devoted to Cancer Patients, Caregivers, and their families. Doctors and other healthcare providers around the globe use the NCCN Clinical Practice Guidelines in Oncology to help determine the best approaches to diagnosing, treating, managing, and monitoring patients with cancer at every stage. The NCCN Treatment Summaries for People with Cancer translate this critical information to the one it impacts the most, you the patient. Knowledge is power in the fight against cancer and NCCN.com is one of the best resources for that knowledge, for patients, family, and friends.
Navigating Cancer brings together the most helpful information, patient education materials and latest research from trusted resources including the National Cancer Institute and non-profit advocacy groups.
Provides general information on cancer but also includes advice on diagnosis and therapy for multiple types of cancer. Patients can also find information on coping with their diagnosis. The Website’s interactive database generates treatment advice based on patients’ responses to the programmed questions. Interactive blogs and a clinical trial matching service are also available.
PAF may be best known for the wealth of financial assistance programs it offers, including one that helps patients with the copayments. It has abundant informational resources on various aspects of treatment for solid tumors and blood cancers. This includes newsletters and downloadable audio files, a guide to chemotherapy-related anemia, and brochures on filing for disability, health savings accounts, and clinical trials. Visitors to the Website can chat online with a PAF case manager about their questions and concerns. PAF has established an African American outreach program and a Hispanic/Latino outreach program to address disparities in care.
The Simple Dollar provides an in-depth look at the financial obligations that generally come with cancer treatment and how to make it more affordable. Their guide looks at how to make cancer treatments more affordable, which discusses payment options, important questions to ask insurance providers, and recommendations from experienced medical professionals.
Promotes brain tumor research and provides a hub for patient support resources. The site contains links to a full range of support options; offers a pen-pal program and will help individuals start their own support group
At this physician reviewed site, you can try the Breast Cancer Coach feature to identify questions you might want to ask your physician. Info on every aspect of breast cancer, the site hosts Ask the Expert Online conferences, discussion boards, and chat rooms. Sections also cover handling expenses and breast cancer in the workplace.
BCS is primarily an online community that offers a discussion forum for people with a diagnosis of breast cancer or their caregivers and family members. It is designed for women with all types of breast cancer, at all stages. Individual boards cover specific topics. Site posts daily links to the latest research news in breast cancer.
Funds free mammograms for women who cannot afford them. Includes fact sheets on risks, diagnosis, and treatment; and an interactive video guide called “Beyond the Shock.” You can register for online message boards and use tools to create an early detection plan.
Promotes community interaction through message boards, chat rooms, expert-mediated discussions, and a helpline. Individuals can create their own pages. Additional resources include a newsletter, videos, book reviews, and clinical trial updates. Visitors can search for a local CCA chapter to seek direct support.
Gynecological Cancers (Ovarian, Cervical)
Women can order free brochures and educational material on all major gynecologic cancers. GCF is affiliated with the Women’s Cancer Network (www.wcn.org), which features a searchable database of gynecologic oncologist cancer specialists. Patients can call GCF’s hotline for assistance.
Awards patient grants to cover a variety of expenses, including dialysis, medication, insurance premiums, and travel. AKF offers a toll-free, nationwide helpline in both English and Spanish. Provides in-depth information on kidney health. Visitors will also find a newsletter, kidney health card, and free kidney health brochures.
The Kidney Cancer Association (KCA) connects patients and families through its community forum chat rooms. Site visitors can also access a nurse helpline and a clinical trial matching and referral service. Other KCA resources include a newsletter, Podcasts, and videos.
Leukemia & Lymphoma
Offers a free software program designed to manage patient treatment data. Site visitors will also find contacts and meeting locations for support groups across the US. Other resources include a helpline, listserv, online support group, a free information pack, and free downloadable publications on various aspects of myeloma care. There is also an archive of educational webcasts.
Provides facts on several types of lymphoma and includes a glossary of lymphoma terms. Patients are invited to blog about their experience. The site also lists links to the latest stories about lymphoma in the news.
Primarily an educational resource that details diagnosis and treatment options. Visitors can use the Ask a Professional tool to submit a question to the site’s contributing physicians.
Besides handling all types of lung disease, it includes information specifically for patients with lung cancer. ALA offers a free interactive tool that produces treatment-option reports tailored to patients’ diagnoses. Provides a helpline and a newsletter and outlines several ALA-sponsored programs to help people quit smoking, recognizing that smoking is a common cause of lung cancer.
This website has a section called Lung Cancer 101 for new patients. It also discusses the different types of lung cancer, as well as diagnosis, treatment, symptoms, and staging. At the site, you can sign up for the newsletter or order free copies of CancerCare publications and education booklets. You can also visit the online support groups.
Contains a detailed explanation of how the lungs work, access statistics on various types of cancer, and view information on the symptoms, diagnosis, and treatment of lung cancer. Visitors can also subscribe to the group’s newsletter or read lung cancer news online.
Mesothelioma is a cancer that affects the lining in the lungs, abdomen, and heart due to exposure to asbestos. This website takes a deeper look into mesothelioma and what one can do if affected by it.
Oral Cancer (Head & Neck)
Engages in fundraising and public outreach to increase awareness of oral cancer. In addition to providing statistics and a forum, the site contains the Webcast “Everything You Always Wanted to Know About Mouth Cancer.” Visitors can receive oral cancer updates by signing up for OCF’s newsletter.
Provides treatment information for patients who have oral and head and neck cancers. Regularly publishes a newsletter. The site features teleconferences and mails a free booklet to patients.
Available in English and Spanish; provides detailed information on diagnosis and treatment of pancreatic cancer. Patients can order a free packet of materials or call to speak one-on-one with a Patient and Liaison Services Associate.
Offers information on prostate cancer screening, treatments and their side effects, and the latest research. Patients can order or download “An Introduction to Prostate Cancer” and receive advice on how to talk about their diagnosis. The site also lists clinical trails.
Provides information on testicular and extragonadal germ cell tumors for patients, caregivers, family, friends, and physicians.
Provides education and support to men with testicular cancer and their caregivers. It offers a wealth of fact sheets, a glossary, active patient forums and blogs, and personal stories. A testicular cancer links section lists additional resources with individual summaries.
What to Expect During, Before, and After Radiation Treatment
This is a series of short, informative videos that share exactly what to expect throughout the process of radiation treatment.
Chemotherapy Drug Websites
Abraxane (albumin-bound paclitaxel) – www.abraxane.com
Afinitor (everolimus) – www.afinitor.com
Alimta (pemetrexed) – www.alimta.com
Arimidex (anastrozole) – www.arimidex.com
Aromasin (exemestane) – www.aromasin.com
Avastin (bevacizumab) – www.avastin.com
Doxil (doxorubicin HCI) – www.doxil.com
Eloxatin (oxaliplatin) – www.eloxatin.com
Erbitux (cetuximab) – www.erbitux.com
Femara (letrozole) – www.femara.com
Folotyn (pralatrexate injection) – www.folotyn.com
Gemzar (gemcitabine HCI) – www.gemzar.com
Gleevec (imatinib mesylate) – www.gleevec.com
Herceptin (trastuzumab) – www.herceptin.com
Ixempra (ixabepilone) – www.ixempra.com
Nexavar (sorafenib) – www.nexavar.com
Ontak (denileukindiftitox) – www.ontak.com
Procrit (epoetin alfa) – www.procrit.com
Revlimid (lenalidomide) – www.revlimid.com
Rituxan (rituximab) – www.rituxan.com
Sancuso (granisetron transdermal system) – www.sancuso.com
Sprycel (dasatinib) – www.sprycel.com
Sutent (sunitinib malate) – www.sutent.com
Tarceva (erlotinib) – www.tarceva.com
Tasigna (nilotinib) – www.us.tasigna.com
Taxotere (doxorubicin) – www.taxotere.com
Temodar (temozolomide) – www.temodar.com
Thalomid (thalidomide) – www.thalomid.com
Treanda (bendamustine HCI) – www.treanda.com
Trelstar (triptorelin pamoate) – www.trelstar.com
Tykerb (lapatinib) – www.tykerb.com
Vectibix (panitumumab) – www.vectibix.com
Velcade (bortezomib) – www.velcade.com
Vidaza (azacitidine) – www.vidaza.com
Xeloda (capecitabine) – www.xeloda.com
Zolinza (vorinostat) – www.zolinza.com
Zometa (zoledronic acid) – www.us.zometa.com