Cancer Information2018-04-26T11:28:56+00:00

Cancer Information

American Association for Cancer Research www.aacr.org

A professional organization for scientists and researchers studying oncology, but also includes information and materials specifically for patients. Features links to cancer support groups and informative websites. AACR’s Scientist-Survivor program connects two key cancer communities: researchers and patients.

The American Cancer Society – www.cancer.org

A comprehensive informational Website replete with resources. ACS support efforts include clinical trial matching and an online community. Visitors seeking direct aid are encouraged to call the helpline or contact their local ACS branch.

Cancer ActionNOW.org – www.canceractionnow.org

Works to help cancer patients find appropriate clinical trials or gain access to an experimental medication. Describes various treatment options, the drug development process, and how clinical trials work.

Cancer Care – www.cancercare.org

CC’s financial assistance grants appropriate funds toward copays, medication, transportation, childcare, and homecare. Free one-on-one counseling from professional oncology social workers is also available, as are telephone and online support groups and workshops. The site contains myriad downloadable publications searchable by topic and cancer type.

ClinicalTrials.gov – www.clinicaltrials.gov

This site is a searchable database of more than 82,000 federally and privately funded clinical trials in the US and throughout the world. You can search by condition, medication, sponsor, location, and other criteria. Each trial listing includes the treatment protocol, eligibility criteria, and contact information. The site includes a glossary and general information on clinical trials.

Lance Armstrong Foundation – www.livestrong.org

Besides raising money for all types of cancer research, the LAF offers several programs for patients and caregivers. LAF provides one-on-one support through the LIVESTRONG SurvivorCare program. The Website has a blog, clinical trial matching service, survivor stories, tools to assist with treatment decisions, videos and Podcasts, downloadable brochures, and more.

National Cancer Institute – www.cancer.gov

NCI offers an exhaustive informational site addressing every type of cancer. The database is updated regularly to include information on the newest treatments and breakthroughs. NCI provides a helpline and live online chat assistance for patients and caregivers. The site also includes a link to the NCI clinical trials database, with more than 8,000 trials currently enrolling patients.

National Comprehensive Cancer Network – www.nccn.com

Excellent site recommended by Dr. Masoud Khorsand, Kymera’s President. This site is devoted to Cancer Patients, Caregivers, and their families. Doctors and other healthcare providers around the globe use the NCCN Clinical Practice Guidelines in Oncology to help determine the best approaches to diagnosing, treating, managing, and monitoring patients with cancer at every stage. The NCCN Treatment Summaries for People with Cancer translate this critical information to the one it impacts the most, you the patient. Knowledge is power in the fight against cancer and NCCN.com is one of the best resources for that knowledge, for patients, family, and friends.

Navigating Cancer – www.navigatingcancer.com

Navigating Cancer brings together the most helpful information, patient education materials and latest research from trusted resources including the National Cancer Institute and non-profit advocacy groups.

Explore articles related to your diagnosis including symptoms, testing and treatment options. We also offer information reviewed and approved by the FDA for over 150 chemotherapy drugs and regimens and their common side effects.
Create a free account on Navigating Cancer and we will help guide you on your cancer journey with recommended resources based on your specific diagnosis.

OncoLink – www.oncolink.org

Provides general information on cancer but also includes advice on diagnosis and therapy for multiple types of cancer. Patients can also find information on coping with their diagnosis. The Website’s interactive database generates treatment advice based on patients’ responses to the programmed questions. Interactive blogs and a clinical trial matching service are also available.

Patient Advocate Foundation – www.patientadvocate.org

PAF may be best known for the wealth of financial assistance programs it offers, including one that helps patients with the copayments. It has abundant informational resources on various aspects of treatment for solid tumors and blood cancers. This includes newsletters and downloadable audio files, a guide to chemotherapy-related anemia, and brochures on filing for disability, health savings accounts, and clinical trials. Visitors to the Website can chat online with a PAF case manager about their questions and concerns. PAF has established an African American outreach program and a Hispanic/Latino outreach program to address disparities in care.

American Brain Tumor Association – www.abta.org

Promotes brain tumor research and provides a hub for patient support resources. The site contains links to a full range of support options; offers a pen-pal program and will help individuals start their own support group

BreastCancer.org – www.breastcancer.org

At this physician reviewed site, you can try the Breast Cancer Coach feature to identify questions you might want to ask your physician. Info on every aspect of breast cancer, the site hosts Ask the Expert Online conferences, discussion boards, and chat rooms. Sections also cover handling expenses and breast cancer in the workplace.

Breast Cancer Support – www.bcsupport.org

BCS is primarily an online community that offers a discussion forum for people with a diagnosis of breast cancer or their caregivers and family members. It is designed for women with all types of breast cancer, at all stages. Individual boards cover specific topics. Site posts daily links to the latest research news in breast cancer.

National Breast Cancer Foundation – www.nationalbreastcancer.org

Funds free mammograms for women who cannot afford them. Includes fact sheets on risks, diagnosis, and treatment; and an interactive video guide called “Beyond the Shock.” You can register for online message boards and use tools to create an early detection plan.

Colon Cancer Alliance – www.ccalliance.org

Promotes community interaction through message boards, chat rooms, expert-mediated discussions, and a helpline. Individuals can create their own pages. Additional resources include a newsletter, videos, book reviews, and clinical trial updates. Visitors can search for a local CCA chapter to seek direct support.

Gynecological Cancers (Ovarian, Cervical)

Gynecologic Cancer Foundation – www.thegcf.org

Women can order free brochures and educational material on all major gynecologic cancers. GCF is affiliated with the Women’s Cancer Network (www.wcn.org), which features a searchable database of gynecologic oncologist cancer specialists. Patients can call GCF’s hotline for assistance.

Kidney Cancer

American Kidney Fund – www.kidneyfund.org

Awards patient grants to cover a variety of expenses, including dialysis, medication, insurance premiums, and travel. AKF offers a toll-free, nationwide helpline in both English and Spanish. Provides in-depth information on kidney health. Visitors will also find a newsletter, kidney health card, and free kidney health brochures.

Kidney Cancer Association – www.kidneycancer.org

The Kidney Cancer Association (KCA) connects patients and families through its community forum chat rooms. Site visitors can also access a nurse helpline and a clinical trial matching and referral service. Other KCA resources include a newsletter, Podcasts, and videos.

Leukemia & Lymphoma

International Myeloma Foundation – www.myeloma.org

Offers a free software program designed to manage patient treatment data. Site visitors will also find contacts and meeting locations for support groups across the US. Other resources include a helpline, listserv, online support group, a free information pack, and free downloadable publications on various aspects of myeloma care. There is also an archive of educational webcasts.

LymphomaInfo – www.lymphomainfo.net

Provides facts on several types of lymphoma and includes a glossary of lymphoma terms. Patients are invited to blog about their experience. The site also lists links to the latest stories about lymphoma in the news.

Liver Cancer

About Liver Tumors – www.aboutlivertumors.com

Primarily an educational resource that details diagnosis and treatment options. Visitors can use the Ask a Professional tool to submit a question to the site’s contributing physicians.

Lung Cancer

American Lung Association – www.lungusa.org

Besides handling all types of lung disease, it includes information specifically for patients with lung cancer. ALA offers a free interactive tool that produces treatment-option reports tailored to patients’ diagnoses. Provides a helpline and a newsletter and outlines several ALA-sponsored programs to help people quit smoking, recognizing that smoking is a common cause of lung cancer.

LungCancer.org – www.lungcancer.org

This website has a section called Lung Cancer 101 for new patients. It also discusses the different types of lung cancer, as well as diagnosis, treatment, symptoms, and staging. At the site, you can sign up for the newsletter or order free copies of CancerCare publications and education booklets. You can also visit the online support groups.

Lung Cancer Circle of Hope – www.lungcancercircleofhope.org

Contains detailed explanation of how the lungs work, access statistics on various types of cancer, and view information on the symptoms, diagnosis, and treatment of lung cancer. Visitors can also subscribe to the group’s newsletter or read lung cancer news online.

Oral Cancer (Head & Neck)

Oral Cancer Foundation – www.oralcancerfoundation.org

Engages in fundraising and public outreach to increase awareness of oral cancer. In addition to providing statistics and a forum, the site contains the Webcast “Everything You Always Wanted to Know About Mouth Cancer.” Visitors can receive oral cancer updates by signing up for OCF’s newsletter.

SPOHNC: Support for people with Oral and Head and Neck Cancer – www.spohnc.org

Provides treatment information for patients who have oral and head and neck cancers. Regularly publishes a newsletter. The site features teleconferences and mails a free booklet to patients.

Pancreatic Cancer

Pancreatic Cancer Action – www.pancan.org

Available in English and Spanish; provides detailed information on diagnosis and treatment of pancreatic cancer. Patients can order a free packet of materials or call to speak one-on-one with a Patient and Liaison Services Associate.

Prostate Cancer

Prostate Cancer Foundation – www.prostatecancerfoundation.org

Offers information on prostate cancer screening, treatments and their side effects, and the latest research. Patients can order or download “An Introduction to Prostate Cancer” and receive advice on how to talk about their diagnosis. The site also lists clinical trails.

Testicular Cancer

The Testicular Cancer Resource Center – www.tcrc.acor.org

Provides information on testicular and extragonadal germ cell tumors for patients, caregivers, family, friends, and physicians.

TC Cancer.com – www.tc-cancer.com

Provides education and support to men with testicular cancer and their caregivers. It offers a wealth of fact sheets, a glossary, active patient forums and blogs, and personal stories. A testicular cancer links section lists additional resources with individual summaries.

Chemotherapy Drug Websites

Abraxane (albumin-bound paclitaxel) – www.abraxane.com

Afinitor (everolimus)www.afinitor.com

Alimta (pemetrexed) – www.alimta.com

Arimidex (anastrozole)www.arimidex.com

Aromasin (exemestane)www.aromasin.com

Avastin (bevacizumab) – www.avastin.com

Doxil (doxorubicin HCI)www.doxil.com

Eloxatin (oxaliplatin)www.eloxatin.com

Erbitux (cetuximab)www.erbitux.com

Femara (letrozole) – www.femara.com

Folotyn (pralatrexate injection)www.folotyn.com

Gemzar (gemcitabine HCI)www.gemzar.com

Gleevec (imatinib mesylate)www.gleevec.com

Herceptin (trastuzumab)www.herceptin.com

Ixempra (ixabepilone)www.ixempra.com

Nexavar (sorafenib)www.nexavar.com

Ontak (denileukindiftitox)www.ontak.com

Procrit (epoetin alfa)www.procrit.com

Revlimid (lenalidomide)www.revlimid.com

Rituxan (rituximab)www.rituxan.com

Sancuso (granisetron transdermal system)www.sancuso.com

Sprycel (dasatinib)www.sprycel.com

Sutent (sunitinib malate)www.sutent.com

Tarceva (erlotinib)www.tarceva.com

Tasigna (nilotinib)www.us.tasigna.com

Taxotere (doxorubicin)www.taxotere.com

Temodar (temozolomide)www.temodar.com

Thalomid (thalidomide)www.thalomid.com

Treanda (bendamustine HCI)www.treanda.com

Trelstar (triptorelin pamoate)www.trelstar.com

Tykerb (lapatinib)www.tykerb.com

Vectibix (panitumumab)www.vectibix.com

Velcade (bortezomib)www.velcade.com

Vidaza (azacitidine)www.vidaza.com

Xeloda (capecitabine)www.xeloda.com

Zolinza (vorinostat)www.zolinza.com

Zometa (zoledronic acid) – www.us.zometa.com